Empowering Stoma Care : Enhancing Knowledge, Confidence, and Support through Collaborative Approaches Between Doctors and Parental Communities for Children with Stomas
LM Lumban Gaol1, LQ Saraswati1, GS Gultom1, M Anita2, Y Firmansyah3, FV Setiawan3, BA Wijaya3
1Department of Surgery, Pediatric Surgery Division, Tarakan General Hospital, Central Jakarta, Indonesia
2Faculty of Medicine Padjadjaran University, Bandung, Indonesia
3Faculty of Medicine Tarumanagara University, Jakarta, Indonesia
Introduction: Effective postoperative care is pivotal, and parents play a vital role in managing complications and outcomes. Despite their importance, parents often struggle with the complexities of stoma care. Managing pediatric stomas necessitates a collaborative effort between healthcare professionals and community support, forming a multidisciplinary team that empowers parents with the knowledge and confidence required for effective stoma management.
Purpose and Objectives: This study assesses the impact of collaborative efforts between doctors and community support systems on children's quality of stoma care.
Methods: A cross-sectional study involving 224 participants evaluated the influence of stoma support communities in Jakarta. The study used a validated 11-question questionnaire to measure community impact and stoma care knowledge.
Results: Spearman Correlation analysis indicated significant relationships between doctor-patient communication and factors such as the stoma's condition (r:0.285, p<0.001), knowledge (r:0.417, p<0.001), support in stoma care (r:0.458, p<0.001), self-confidence (r:0.440, p<0.001), support systems (r:0.407, p<0.001), and ease of access to care (r:0.357, p<0.001). Multivariate analysis highlighted that the quality of doctor-patient communication significantly affects stoma condition, support systems, self-confidence, and access to care (p<0.025). ROC prediction analysis showed that effective doctor-patient communication through Komunitas Stoma Pada Anak Jakarta (KOSPAJA) significantly enhances support and self-confidence in stoma care (A>0.70).
Conclusion: The collaboration between doctors and community support significantly enhances parents' knowledge, confidence, and support in managing their child's stoma, leading to improved care quality and reduced complication rates.
Keywords: children, doctor, parental community, stoma, stoma care